luminescentfeeling Says:

May 6, 2009 - Good to see this video out in public. POTS is more than tiredness though and stomach problems. It's primarily chest pain, pulse rate episodes of over 180bpm, being bed-ridden, being wheelchair and house-bound etc, seizure Good start, but we need to know more about the severe nature of the illness. I spent 9 years being unable to leave my house. I made improvement on MIDODRINE and BETA BLOCKER, and VASCULAR TIGHTS. But there is no cure, and my life is still ruined. Thank you.

kamajiboy Says:

Jul 6, 2009 - What treatments work best to relieve symptoms?

jilly9 Says:

Jul 25, 2009 - I have POTS due to Ehlers Danlos syndrome. Won't outgrow it.

sniper710c Says:

Aug 4, 2009 - my pots syndrome is very severe in the fact that blood pressure goes up insted of down while standing. pulse stops dead wile fralling to sleep i need to ware a difibulator just to go to bed. mine was trigger by a lithotripsy. a treatment for kidney stones. they over did it damaged the kidney and as a result pots syndrome developed. i think that my job had sumthing to do with it too. lots of solvents and chemicals. they say pots will be the cause of my death. its that extream im a rare case.

Lameeeee Says:

Aug 11, 2009 - Try the Beta-Blocker, Metoprolol

eurotrancemixes Says:

Aug 14, 2009 - My pulse is 137 standing on video on beta blockers. (SEE on youtube: ME patient demonstrates Dysautonomia/POTS) At my worst my pulse was 180bpm after a 5 min stand. POTS is serious, yet most doctors have no idea what it is or how to treat it. Good upload, thanks for sharing.

islamrapesthemind Says:

Aug 29, 2009 - penis works good

dne8 Says:

Sep 8, 2009 - man all these years I forced myself though this with whining parents and now they say it's a syndrom? I should check with a doctor ...

lauriloubird Says:

Oct 5, 2009 - I am 37 and still have this. Why do they say she will grow out of it at 20. I know their is an elderly and childhood. I got the elderly type at 7 fainting started and no meds help. I wonder why they don't know why they do not explain why so many of us have it as old as we are? Like Sarah who was a marine. Your vagus nerve does not just get fixed???

vitz072 Says:

Oct 6, 2009 - I love Megan!!! :) shes a friend of mine I met freshman year. and she really battled with the symptoms. but she is better now. and I'm so happy for that!!!!

sundoober Says:

Oct 7, 2009 - Have a daughter with EDS (Ehlers/Danlos Syndrome) who suffers with POTS too. NOT FUN. So sad about all the times we didn't understand.

mvflyhalf Says:

Oct 7, 2009 - You can "grow-out" of POTS? I am guessing there is no explanation for why this is? Seems we keep allocating our scientific resources toward treating hair loss, acne and ED over understanding stuff like this.

DeathEdible Says:

Jan 1, 2010 - I have POTS, but I have lots of other conditions too. Lupus, Chronic Fatigue, and Fibromialgya.... but I don't know how to spell that last one. So I go in and out of depression and stuff. My mom always tells me I'll grow out of it.... I sure hope you're right about this.

DeathEdible Says:

Jan 1, 2010 - I have POTS, Lupus, Chronic Fatigue, and.... that thing you use Lyrica for. My life sucks, too. But you are one of the first people with POTS I can truly feel sorry for. Hang in there.

DeathEdible Says:

Jan 1, 2010 - My doctor, when I was first a POTS patient, put me on a beta blocker and it sent me to the hospital for a week. The doctors never believe me that I need fluids to feel better, for whatever reason. One time, in my sleep, I kicked the blanket off my leg because I was getting hot, and my heart rate went from 110 to 180 like THAT. It helps to eat salty snacks and drink TONS of fluids. I'm there for you.

DeathEdible Says:

Jan 1, 2010 - This is what I'm most afraid of. I'm 13. Mom says ill grow outa it. I never believe her though. I have a feeling I'm gonna be just like you. No offense.

coolgirlee Says:

Jan 16, 2010 - only 4,166 views.... people need to watch this. People need to know that such a thing exists. That it is not in our head! I am so angry! Why so many doctors have to be so stupid? I had to teach my doctors what POTS is! There is more people who need to know what this is . . . We need a cure!

coolgirlee Says:

Jan 16, 2010 - @vitz072 She doesn't have POTS anymore?

ddominatedd Says:

Feb 1, 2010 - I had this since I was 14 (19 now) and I still have it but have been a little better these past 2 years. I am hoping that I wont have this anymore in about a year or 2. im in michigan and had to go out to mayo clinic in MN to find this. Since my last visit 2 years ago i have slowly been getting better. I hope that you guys also start to get better as I have.

squishedlizard Says:

Apr 7, 2010 - I'm glad to hear about this video. I've had it my entire life. This is great to hear someone is talking about it.

squishedlizard Says:

Apr 7, 2010 - I'm glad to hear about this video. I've had it my entire life. This is great to hear someone is talking about it.

dancamp009 Says:

Apr 27, 2010 - I've had a very serious case of POTS for the last six years and I think I finally figured out the cause in my case. It was processed sugar. I quit ALL processed sugar and now I have a perfect 56 heart beat and I feel great. Believe me I tried everything without success until I finally removed all processed sugar and for the last seven days I've held out at 56 HBs per minute. Hopefully this will last. I'm confident this time that it will. Good luck to you.